I have a rare condition that doctor's admit something is very wrong with my immunity but just don't seem to want to spend the time to help me. I keep being sent to a new doctor who sends me to a new doctor. Meanwhile, I am getting worse and living alone with my 23 month year old girl. I have severe rashes, swelling of face and mouth. My joints swell and I often have fevers. I have extreme muscle pain and I have days I can barely lift my daughter into her bed. Anything I put on my skin other than WATER gives me horrible rashes and welts. Doctor's have witnessed this first hand. They say because I am so allergic they can't help calm my skin down. I have severe chemical allergies. I cannot wear any fragrances or be around anything at all that has a scent or I can't breath well and I get rashes. How can I live like this? My hair now is falling out and I just keep getting worse. I've been told by doctors I have pressure urticaria which means my skin can't handle anything against it but that does'nt explain all my symptoms. I can't seem to get any one to really care about what I'm dealing with. There are days my own daughter is afraid of my face because of the swelling and rashes. It breaks my heart and I have no idea who to turn to for answere's and HELP. I feel so alone! Thank you for any suggestions you can give me.
