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Trigeminal neuralgia

Has anyone ever drawn SS Disability with this condiscion.  I'v had it for 10 yrs.  Getting pretty tired of it.  I take 1600 mg. of tegretol a day.  It makes me very goofy.


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"Never let Yesterday use up too much of Tomorrow."

"One man's trash is another man's treasure."

Ask you doctor to try other anti-epileptic drugs. Tegretol is known  as the 'dumb dumb" drug.

Posted 2008-11-02T15:50:50Z
 

Marsha, I was just awarded s.s. disability for trigeminal neuralgia.  I told the judge that who would hire someone that I can't promise that I would be there everyday. 

The first doctor I went to was increasing the tegrotol too.  But, it takes a alot of wear on your body.  The doctor I go to now has me on 800mg along with other meds.  I have shaking in my hands and I am, as my son says, loopy.  The doctor said it's the tegrotol. 

Good luck with disability.  I ended up having to see a judge.  This disease is not well known.  I got a good attorney.  That helped alot. 

Posted 2008-12-01T23:02:04Z
 

Marsha, I have had TN for 18 years, so i know how you feel. i am on disability now for six seven years.  they do have advocates to help you get on disability.  Fill out the forms, save copies  and keep jumping through the hoops and it will happen.  

i cant take anti epileptic drugs anymore, too many physcotic espisodes, with my life just passing me by,  I am one vicodin now.  Good luck

Posted 2008-12-12T06:23:48Z
 

marsha as i may not be of much help, your situation sounds identical to mine, three years running; trileptal has increased to 1200mx6 hours. The second neurolist confirmed trigiminal neuralgia, I have been patient going throughtout radiation,( gamma knigh) . I live daily with the dizzyniss forgetting  depression, my family has been good, not talking about it because it hurts, I am working on ss, for the second time around because I tried to work for a while. but the unthinkable happend; I actually had 2 accidents no one was hurt, accept there was a fear that was  left in me,and always be with me, so what ever it takes. MY PRAYS ARE WITH YOU.  

Posted 2009-08-09T21:32:38Z

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