Hello,
I am not a M.D. but I can sympathize with you. I have TN pain and it makes me want to rip my face off it hurts so badly. I would check into the Mayo Clinic in Rochester MN. I have been there and they do not mess around. You can call them yourself and set up your own appts. You first go there for an intake appointment by a nurse who gathers all of your informations, take all of your tests, surgeries, reports, medical notes, everything you can get from your doctors the better. After you interview with the nurse, you best be on stand by. They usually call you on a Thursday or Friday and ask if you can be out there on the following Monday. Once there, they will probably run their own tests. They do not waste any time either. You will be very busy every day from about 7am until whenever you are done with the tests that they have scheduled for the day.
I was there for 2 months, for other reasons, and they were the first place after 5 years that could give me any diagnosis for all of the symptoms that I have. Make a list of your medications and all of your symptoms also. If they believe that you should see a gastro physician because of your "other" symptoms, they will schedule it. They are great. They will get to the bottom of everything that your ailing from. They will also treat the problems and they do everything quite fast.
There is a hotel that you can stay in. When you call the Mayo Clinic, ask them about the hotel that is across the street from the main clinic. It goes underground to the clinic, has a mall, eateries, everything that you need to live there for a while. It is a great place.
I wish I could tell you more. About the risks and such but I am working on trying to get other medical problems treated here at home and it has been put on the backburner for me as of now.
Good Luck,
Alexsmom10
